19 May

Shaky Foot Wisdom 


Have You Heard? 

May 19, 2022 

Not sure what to say about this particular point of my Parkinson’s journey without thrashing, gnashing, and spewing negativity. Like an old friend Julie (a fellow therapist in Western Kansas many years ago) used to say, feelings are like burps, they just have to come up. 

Suffice it to say with my now needing a CPAP machine that is backordered due to supply chain issues, though I sleep mostly through the night with the addition of Trazodone, having sustained restful sleep is the goal when I am able to utilize the CPAP machine. 

Again, pain is a constant companion keeping me from engaging in Rock Steady Boxing™. I am collaborating with a team of doctors to see what can be done to address the pain in my neck, hands, back, hips, legs, and feet. As one doctor said, the cause is multifactorial, both anatomical and Parkinson’s related. Once the pain is managed, I hope to again reengage in a form of exercise. 

The good news that I really still want to shout from the rooftops, is that I remain wildly creative, with wide range of poetry being written daily! 

Yet, though there is happiness and joy in my life with my wife Dawn making substantial changes in her work life, I find feeling sad is again part of my day. 

For anyone on this Parkinson’s journey who may get down like this, I am able to center myself and count the things, people, and places for which I am grateful. Gratitude boosts my spirits and keeps me focused on all that is so good in my life!

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